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Rare diseases -- Information services


National Organization for Rare Disorders: Index of Rare Diseases

The National Organization for Rare Disorders (NORD) is a nonprofit "federation of voluntary health organizations dedicated to helping people with rare 'orphan' diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service." In accordance with their educational...
NIH Office of Rare Diseases Research (ORDR)

This National Institutes of Health website focuses on rare diseases, which are also called orphan diseases. The FAQs section in the About ORDR link states that a rare disease is a "disease or condition affecting fewer than 200,000 persons in the United States. An estimated 25 to 30 million people in the United States have a rare disease." Visitors will find that the information on this website is...